Just the Going's On: PANDAS, Camel Milk, test results

Here is what is happening as of lately.  February, hurry up, please.

School is still going well. Thank God.  Drew knows the names of all the kids and sometimes talks about them at home.  He purposefully refuses to answer the, "what did you do at school" questions though.  So, I have to skillfully pry those answers out of him.  His RDI therapist and I have talked about it and we do not think it's because he cannot answer them.  This child remembers everything and can tell you details about events.  It's plain ol' stubborn rebellion.  Or defiance.  He is behaving although I believe his is arguing back with his teacher probably more than most kids.

Camel Milk- Well, we got new milk at the end of January that came from a different source.  Rumor has it that the milk had actually been frozen for a year.  Do you think I told that to Drew? Heck, no.  Did he notice a difference?  Heck, yea.  He hated it.  It had a different consistency, was hard to defrost, and clearly tasted different.  I was barely getting one ounce a day in him for awhile; and then, I decided to take him off that milk before he went on complete strike.  I told him that I would try to order fresh milk as soon as the camel's were ready.  So, he had been off camel milk for about 2 weeks...  Fresh milk arrived yesterday.  Drew said, "Mmmm, much better.  it's perfect."  Still, I think he has bad memories of the old milk or just isn't as in to it anymore.  I gave him 3 oz this morning and he wasn't all over it like he used to be.  :(  Anyway, I'm anxious to see if we see any changes in the next week or so.  Hopefully, it will help with oxalates again and mood.  Perhaps, it will help with yeast and bacteria too....which leads me to...

Did I tell you that I got his OAT and CDSA results back?  No presence of yeast or clostridia.  Major, major hooray.  Until, I read further that he now has klebsiella, citrobacter (two kinds) at 4+, and strep.  (Strep- surprise, surprise).  We have some things to address metabolically and I have an appointment with Dr. Woeller tonight. 

We have allowed Drew to have some sugar containing foods due to the Valentines Day events...

I can't help it, I feel sorry for him.  He also has had a mound of fruit.  We're already paying the price: red cheeks, climbing the furniture, somewhat crashy, hyper, and the give away- red ring around butt.  Let's be clear, the amount of actual sugar that he consumed was so tiny, miniscule; but, as always, he reacts.  **Sidenote.  The other day, Drew was outside playing with our neighbor's girls.  They invited him in for a tea party.  It was 10 am and they were going inside to have tea and cupcakes.  Must be nice.  We had to decline...fortunately, we had plans for Drew so he wasn't upset.  Still.  Must be nice.***

Moving on.

PANDAS.  Oh yes, my favorite bear is back.  We were doing the strep nosode for a couple weeks, remember?  Pretty good results, tic disappeared, great behavior, new things, etc.  Then, his immune system probably kicked up and somewhere during all that his oxalates kicked up too.  Oh, and that's about when the camel milk ran out.  He also was showing obvious detoxing signs...good but bad with the oxalates.  So, I opted to stop the strep nosode.  And, then, every kid in his class got sick.  And then, so did Drew.  I thought at first it was detox related but it wasn't.  he had the virus they all had.  And, that is when my bear friend decided to come back and visit.  I thought I heard a throat clearing.  Then, I thought he was acting a bit more rigid than usual.  Then, I was sure he was throat clearing...like 20 times a day.  And, instead of having to have things a certain way...which is he typical rigid PANDAS behavior, he is now adament to have things different than how I have them.  Period.  If I say 3, he says 2.  If I say blue, he says red.  You know.  We've been here before.

And, if I needed anymore proof about that d@mn bear....  now, I have strep throat.  Of course, I do.

So, Februrary has been fun.  On the upside, he did start soccer and is doing pretty good.  I think Hubby is finally catching on to RDI which is very helpful.  Drew's referencing is getting so awesome.  We've got the new milk now, I've got more strep nosode that we've already started dosing and seeing things with, ummmm, and well, that's all I got for now.  OOOOOHHHHHHH WAIT... I do have more...

His school had the local university's speech-language peeps come out to do free speech and hearing tests on the kids.  Did I tell you this?  I didn't want to sign Drew up for it because I'm trying to keep the school a bit in the dark.  It would have been more weird, though, had I not signed him up.  So I did.  The results came back this morning.

Drumroll please....




He passed!!!!!! 
There were places for them to check mild concern or possible concern, definite concern, failed, etc.  Nope, he PASSED!  He passed a speech and language test!  Who'duh thunk it just a few years ago????  Passed! Child presents as age appropriate for speech-language.  (Oh, hearing too!)